News

Mum refuses to let 'price tag' hold her son back

Jackson Hislop has Cerebral Palsy and his mum is determined to give him the best quality of life that she can.
Jackson Hislop has Cerebral Palsy and his mum is determined to give him the best quality of life that she can. Contributed

JACKSON Hislop was born 15 weeks premature and spent the first 132 days of his life in intensive care, but that was just the beginning of his fight.

The "cheeky little man" who draws people in with his big blue eyes, contagious smile and massive personalty, has been diagnosed with a debilitating disease.

His mum, Kristy Lea Hislop, said Jackson's premature birth and difficult early start left him with quadriplegic dystonic cerebral palsy and a hearing impairment.

"Just the ability to crawl, sit, stand, walk, talk and feed himself will be a fight to achieve," she said.

"Jack experiences fluctuating tone in his body and can go from floppy and unable to hold his head up to completely stiff and experiencing painful muscle spasms in seconds.

 

CAN YOU HELP? Jackson Hislop has .
CAN YOU HELP? Jackson Hislop has . Contributed

"Doctors are understandably hesitant to guess exactly what Jack's capabilities will be but there is one word that keeps being brought to our attention - neuroplasticity.

"This means before Jackson reaches the age of five we have a small window of time to retrain the pathways in his brain with therapy and the help of supportive equipment."

Ms Hislop said the tiniest of gains made the world of differnce for Jackson's quality of life, but the gear the family needed came with a hefty price tag.

 

Jackson Hislop.
Jackson Hislop. Contributed

The NDIS funding available to them would go towards a therapy chair that costs $10,000, but there would not be enough left over for other specialist gear and therapy sessions that can drastically improve the lives of people with the incurable condition.

"We can't let a ridiculous price tag stop us in our paths," Ms Hislop said.

"We will explore every avenue while of course maintaining a balance and make sure just being a kid comes first."

Jackson's family has started a GoFundMe page taking contributions to help the one-year-old boy make as many gains as he can over the next four years, after that time doctors have told the family the window to retrain pathways in Jackson's brain will close.

To find out more about Jackson's journey visit the GoFundMe page.

Topics:  cerebral palsy health jackson hislop mooloolah


Stay Connected

Update your news preferences and get the latest news delivered to your inbox.

Never too young or old-er to be champs

COMMUNITY CHAMPIONS: Outstanding first aiders Lilly Tindal (back) and Lara Porter with club mates Joseph Goulding and Tim Moody.

Noosa Heads lifesavers hailed as community inspirations

Call to remove 'killer' nets

TANGLED UP: This sub-adult bottle nose dolphin was killed in shark nets off Noosa's Main Beach on Wednesday.

Local upset by shark net toll

Who took the chair?

Irene and Steve Jesienowski at the location of the now-departed seat

Residents find view seat missing

Local Partners

Noosa being taken for a ride with high fuel prices

A Noosa councillor is fed up with Noosa continuously being taken for a ride by petrol providers and has made an official complaint to the ACCC.

Bundy mum blogging to get families offline

FAMILY FUN: Deonie Crowther is holding family craft sessions at the Windmill Cafe in Bargara.

Crafty projects a hit with parents and children

Take luxury food, wine tour around Toowoomba

FOODIE CULTURE: Emily Moon (left) and Cheryse Bliesner with the Hummer used for Toowoomba's Luxury Food and Wine Tour.

It is designed to highlight the best produce the region has to offer

Country music stars coming to Ipswich

Ipswich will get it's country on when The Country Superstars Tribute Show hits town on Friday, June 30 at Brothers Leagues Club.

A UNIQUE tribute show will bring a bit of country into the city.

Wonder Woman sequel underway

IT’S MADE $US573 million at the box office so far, so it’s no surprise plans are already underway for a Wonder Woman sequel.

MasterChef: Fish fry feast too much for Ipswich cook

Willowbank native Nicole Stevenson has been eliminated from MasterChef.

NICOLE Stevenson narrowly misses out on MasterChef's Top 10.

Thor on holiday: Chris Hemsworth is here!

If you didn't know who he was - you'd think he was a local

Nintendo set to release the Super NES Classic Edition

Nintendo is releasing a miniature version of their Super NES console

Brad and Sienna spotted ‘holding hands’

Brad Pitt has been spotted at Glastonbury.

ACTORS were seen together at the Glastonbury festival.

Big Brother winner Reggie Bird could end up homeless

BACK in 2003 she won the third season of Big Brother Australia, pocketing $250,000 for her win — but Reggie Bird’s life has been far from easy since then.

The reality star makes a heartbreaking confession

Schapelle Corby's Bali boyfriend 'lonely' now she's free

“I really hope we can see each other again in the future."

Island caretaker has weeks to live, abandons paradise

St Bees managing director Phil Webb, has been struck with illness and it has prompted the sale of the island.

His health has deteriorated in the past couple of months

Prime CBD site sold as laneway culture progresses

The Longs building Ruthven Street has been purchased by a group of investors to be renovated into a series of shops/eateries.  June 2017

How investors and council plan to transform the Toowoomba CBD

Gateway opens to $3b Coast mega estate

VISION: An artist's impression of the Palmview development 'Harmony' and its linear park.

New road provides link from the past to the future

Major German supermarket set to open in southeast Queensland

German supermarket giant Kaufland is understood to have approached southeast Queensland councils about a possible distribution centre, which would kickstart the establishment of new supermarkets.

Supermarket giant Kaufland has its eyes firmly on Queensland.

Confident first half year for commercial property

SIGNS OF CONFIDENCE: A mixed-use site at 139 Eumundi Rd, Noosaville, was one of the outstanding results achieved in the year.

Sunshine Coast market showing strong signs for next five years

Ready to SELL your property?

Post Your Ad Here!